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Nobody Warned US

A show, a library, a community

Nobody
Warned US

Lyndsey and Nikki. Endometriosis. Interstitial cystitis. A sigmoidocele. A rectum that telescopes toward the uterus until the cervix drops. Each finding called mild. Together, a life — and a door for anyone still being told theirs is normal.

Wait, that’s not normal?Meet the hosts
Lyndsey and Nikki, hosts of Nobody Warned Us, looking at each other against a burgundy backdrop
Lyndsey and Nikki. Two friends, one pelvis-shaped blind spot in medicine.

“Wait, that’s not normal?”

A recurring segment for the symptoms that get billed as anxiety, hygiene, heavy periods, or IBS — until a defecogram, a pelvic floor exam, or a surgeon who actually looks says otherwise.

A segment from Nobody Warned Us

Statistics

The scale of “not that common”

All figures

  • 1 in 10

    reproductive-age women with endometriosis

  • 7–10

    years

    average wait to an endometriosis diagnosis

  • 1 in 4

    U.S. women with at least one pelvic floor disorder

  • 20.3%

    of IC/BPS patients also report endometriosis

The stack

One pelvis, several waiting rooms

How they travel together

IC is not “just the bladder.” A grade-1 sigmoidocele is not “nothing.” Internal rectal intussusception can press through a deep cul-de-sac toward the uterus and drop the cervix. A hypertonic floor multiplies all of it. Medicine slices this into urology, gynecology, and colorectal. Your body did not.

  1. 01

    Pain starts

    Endo, inflammation, or a bladder that never quiets.

  2. 02

    The floor guards

    Muscles clench. Kegels make it worse. Nobody checks.

  3. 03

    Emptying fails

    You strain. A sigmoidocele and a telescope take the space.

  4. 04

    The apex drops

    Pressure from behind. A cervix that does not stay put.

Conditions

Named, not minimized

Tissue that does not belong, pain that does.

Endometriosis

Tissue similar to the uterine lining grows outside the uterus — on ovaries, peritoneum, bowel, bladder, ligaments. It is not “bad periods.” It is a chronic inflammatory disease that still takes, on average, seven to ten years to name.

Read the map

The UTI that never cultured.

Interstitial cystitis / bladder pain syndrome

A chronic bladder pain condition: pressure, urgency, frequency, and pain that often eases after you void — with urine cultures that keep coming back negative. It is frequently mislabeled as “recurrent UTIs,” anxiety, or “just drinking too much water.”

Read the map

A muscle group nobody taught you existed — until it hurt.

Pelvic floor dysfunction

The pelvic floor is a bowl of muscle, fascia, and nerves that holds bladder, uterus, and rectum, and has to both contract and fully relax. Dysfunction is not one thing: the floor can be too tight, too weak, poorly timed, or all three in different layers.

Read the map

When the colon drops into a space it should not occupy.

Sigmoidocele

The sigmoid colon descends into the rectovaginal space (the pouch of Douglas). It is a posterior-compartment prolapse that ordinary speculum exams and static ultrasounds often miss. Grade 1 means “mild” on a ruler. It does not mean mild in a body.

Read the map

The rectum telescopes into itself — and sometimes toward the uterus.

Rectal intussusception / internal rectal prolapse

The rectal wall folds and slides into the lumen below it, like a sleeve pulled into itself. When the leading edge aims anteriorly, that telescope can press through a deep cul-de-sac toward the vagina, uterus, and cervix. External prolapse is the version you can see. Internal is the version people are told is in their head.

Read the map

A cervix that does not stay where you left it.

Cervical descent & uterine support

The uterus and cervix are hung by the cardinal and uterosacral ligaments and the endopelvic fascia. When those supports yield — or when something behind them keeps pushing — the cervix drops. You might feel it on a tampon, on a finger, during sex, or as a low ache that was billed as “normal anatomy.”

Read the map
All conditions

Studies

What the literature actually says

Guidelines first, then the overlap papers. Saved locally on this device if you want to take them to an appointment.

Open the studies tab

Resources

Organizations, guidelines, people who do this

EndoFound

Endometriosis Foundation of America

Education, advocacy, surgical training, and the ENPOWR school program. A first stop for endo literacy that does not treat period pain as a personality.

ICA

Interstitial Cystitis Association

The U.S. patient organization for IC/BPS: education, diet starting points, provider search, associated-conditions pages (including endometriosis and pelvic floor).

AUGS

American Urogynecologic Society

The professional home of urogynecology. Patient education plus a “find a provider” path for prolapse, incontinence, and pelvic-floor fistulas.

IPPS

International Pelvic Pain Society

The society for clinicians who treat pelvic pain as a real field. Provider locator and educational meetings. A better random-directory roll of the dice than “gyn who does a little pain.”

Community

Bring the sentence you were told not to say

Lyndsey and Nikki built this so other people with endometriosis, IC, prolapse, and a pelvic floor that will not stand down can hear it sooner. Watch the show. Comment. Stitch. Tell a piece of your chart — only as much as you want the internet to hold.

Read their stories

If they said it was normal, start here.

Tap the symptoms you were told to live with. See which conditions keep showing up. Take the list — and the questions — into the room.

Open the segment