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Nobody Warned US

The hosts

Lyndsey and Nikki. Two charts. One community.

Nobody Warned Us is a show, a library, and a place to say the pelvic sentences out loud. Endometriosis. IC. A bowel that telescopes. A cervix that drops. Surgery that keeps getting scheduled. We tell it so the next person does not have to invent the language alone.

Lyndsey and Nikki, hosts of Nobody Warned Us, looking at each other
Lyndsey and Nikki. Best friends. A pelvis-shaped blind spot in medicine.

Host

Lyndsey

Endometriosis · IC · a third laparoscopy on September 8

Nearly four years of this, dated from the day a large cyst ruptured and hemorrhaged internally. Blood in the abdomen. Organs stuck together. A scene nobody had prepared her for, and a diagnosis list that kept growing after.

Endometriosis and interstitial cystitis. Two laparoscopies already. A third is scheduled for September 8 — the uterus, the cervix, and possibly an ovary. That is not a “watch and wait.” That is a body that has already been opened twice and is still not done.

She is not here as a cautionary tale. She is here because the waiting rooms did not warn her, and she is done pretending that is an acceptable way to learn pelvic disease.

Host

Nikki

IC · grade-1 sigmoidocele · rectal intussusception · cervical descent

Interstitial cystitis. A grade-1 sigmoidocele. Rectal intussusception — a prolapse that telescoped toward the uterus and dropped the cervix. Each finding called mild. Together, the reason emptying, pressure, and pain never added up to “just IBS.”

She has been battling symptoms her whole life and filed them under normal. Pain that changed shape. Patterns that would not stay regular. Surgery already. The plot twist was not the diagnoses. It was how long it took anyone to look.

Grade 1 on a report is a measurement. It is not a verdict on her week, her bladder, or a rectum that can load a cervix.

Why we built a community, not just a channel

Gynecologic and pelvic disease is still taught as isolated organs. Bladder in urology. Uterus in gynecology. Rectum in colorectal. The floor in physical therapy if you are lucky. People living the overlap are not rare. They are just rarely in a room that treats the stack — and even more rarely in a room that lets them say it without shrinking.

We want the tough topics said out loud. Not as inspiration. As recognition. If you have been collecting your education from five specialties and a decade of “you’re fine,” this is a door. Watch. Comment. Stitch. Tell the part you were told not to mention. The next person is looking for the sentence we did not get.

Share your story

Bring the thing they called normal

We read the comments. Tag us on YouTube, X, or TikTok — or stitch the segment. You do not owe the internet your full chart. A single true sentence is enough to open the door for someone else.

What this site is

The recurring segment — Wait, that’s not normal? — is for the sentences that got used instead of a workup. The library is the conditions, the studies, the statistics, and the directories that belong in the bag you take to the next visit.

We are not a clinic. We are two friends who compared notes, realized the notes were the same, and got tired of each finding being called mild.

What we will not do

  • Diagnose you from a tap of symptoms.
  • Sell a supplement protocol or a personality.
  • Pretend Kegels are the whole pelvic floor.
  • Treat “normal imaging” as the end of the story.
  • Tell you to be grateful it is “only” grade 1, “only” IC, “only” another laparoscopy.

“Wait, that’s not normal?”

A segment from Nobody Warned Us

Start with the segmentConditionsStatistics